POLISH HUNTINGTON’S DISEASE ASSOCIATION
INTERNATIONAL VISEGRAD FUND 
23rd of April 2016 (Saturday)
08:00 - 09:00 participants registration
09:00 - 09:20 Danuta Lis, Jerzy T. Marcinkowski - Opening
09:20 - 10:00 European Reference Network On Rare Neurological Diseases project introduction by Jean-Marc Burgunder
participants introduction
Session of Visegrad Countries participants
10:00 - 10:10 Daniel Zielonka, Poland Introduction and aim of the conference
10:10 - 11:50 Exchange of information on current practices and research
in rare neurological disorders in Europe – introduction of all participants and presentation of their fields of interests – participants one by one present her/his idea of the network.
11:50 - 12:00 Coffee break
European/global context
12:00 - 12:30 Bernhard Landwehrmeyer, Germany Huntington’s Disease and observational studies
12:30 – 1 2:50 Adrian Danek and Bernhard Landwehrmeyer, Germany Experience from Neuroacantocytosis – bulding the network and IT platform
12:50 – 13:00 Jean-Marc Burgunder, Switzerland European Reference Networks on Rare Neurological Disorders collaboration opportunities for the Visegrad countries
13:00 - 14:00 Discussion moderated by Jean-Marc Burgunder, Switzerland European Reference Networks on Rare Neurological Disorders Identification of key collaborative projects, next steps, roadmap and responsibilities for future collaboration
14:00 - 15:00 Lunch
15:00 - 15:30 Rafa³ P³oski, Poland New Generation Sequencing as a diagnostic tool for network
15:30 - 16:30 Discussion Moderated by Daniel Zielonka, Poland Assessing the gaps and challenges for patients in Visegrad countries
16:30 - 16:50 Coffee break
16:50 - 18:00 Discussion moderated by Daniel Zielonka, Poland Split of tasks for participants
18:00 - 19:00 Danuta Lis, Daniel Zielonka, Poland
Summary of the meeting and farewell
19:00 Dinner
PROJECT PROGRAM